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Old 04-20-2009, 11:12 AM   #1
Kathi
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Paul Update

Well, it has been a while since I gave an update on Paul so here it goes. Paul have been increasingly confused. He doesn't like change and never has but now that they have moved him to a private Hospice room he keeps asking me to take him back to his other room. He says he wants his other bed. They moved his bed with him so I keep telling him he is in his bed. Today he told me he wanted to come home and sleep in his bed. So I brought him home. I tried to put him in our bed and he wouldn't go for it. He said it wasn't the same bed. I just went along with him. I sat him on the couch and he wanted something for lunch. So I made his a ham and cheese sandwich. He ate the ham and cheese but the bread wouldn't go down. He has gained weight. He went from the first of December being 120 lbs to today he is at 146 lbs. But that is because he is being tube fed and the liquid that they give him is very high in calories. It still won't make any difference though because it won't stop the tumors from spreading. He has gone from .50 of morphine to .75 in just a week. So the pain is increasing. Soon he will have to have more and more I am afraid. He is getting a little testy with me which isn't like Paul at all so I know he is in a lot of pain. I spend all of my time with him be it at home or at the Vet's home. They are also giving him more Adivan for his anxiety. He also has a pain patch. So I know when he says he hurts he really hurts.
Monday, April 20th.
The last couple of days I noticed that his peg site has really been leaking. Today when I went in the stitching had pulled away from the site which means there is nothing holding it in his stomach. I had the nurse disconnect the feeding tube because all of the Jevity was just running out the hole in his stomach onto his clothing. I am amazed that the feeding tube stayed in as long as it did. They have now given him 2 pain patches which when they first put it on him he isn't worth a darned for a couple of days because it is so strong. I took him to lunch today and he ordered a beer and a hamburger but couldn't swallow it. He ate some fries and I cut his burger meat up very small and he was able to tolerate it pretty well. Everything else is about the same. Just taking it day by day. God will see to it that everything falls into place. I give all of my problems to him now. I don't even try to fight it and do it myself......I think I have learned he is much better at this then I am. I will keep you posted. Bless you all. Kathi
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Old 04-20-2009, 11:35 AM   #2
boylanag
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Kathi, you and Paul are still in our thoughts and prayers.
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Old 04-20-2009, 11:35 AM   #3
Mrs. CountryGuy
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Kathi

Thanks for checking in here, so many of us have been wondering how you and Paul are doing.

Our prayers continue to be with you.
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Old 04-20-2009, 12:33 PM   #4
ols1932
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Kathi,
We continue to keep you and Paul in our prayers. I know from experience how hard this is for you. Day-to-day activities are hard for you but know that we are really pulling for you.

Orv & Marge
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Old 04-20-2009, 12:37 PM   #5
H. John Kohl
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Kathi,
We keep you and Paul in our prayers. Ann's sister's husband is going through he same thing so we really understand. Know there are many pulling for you both.
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Old 04-20-2009, 02:24 PM   #6
Yamaha_Mama
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Dear Kathi, We continue to keep you and Paul in our prayers. You are an angel. Ken and Marilyn
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Old 04-20-2009, 02:26 PM   #7
NCFischers
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My Dad went through it also. You both are in our prayers.
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Old 04-20-2009, 02:54 PM   #8
Waynem
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Kathi,
God bless and keep you through this trying time.

Our prayers are with you and Paul.
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Old 04-20-2009, 04:15 PM   #9
Wayne and Carolyn Mathews
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Our prayers are with you.

Wayne & Carolyn
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Old 04-20-2009, 04:25 PM   #10
Okie Guy
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Kathi,

You and Paul are still in my prayers every night.

Phil
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Old 04-21-2009, 03:26 AM   #11
refocused
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Our prayers are with you, too. God bless you both -

Chuck and Suzanne
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Old 04-21-2009, 11:49 AM   #12
vickster
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Kathi - thank you for taking the time to bring all your concerned friends up-to-date. Our prayers continue to be with you.
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Old 04-21-2009, 02:40 PM   #13
nghelwer
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Kathi,

Nancy & my prayers are with you and Paul.

May our Lord help you both through this trying time in your lives.
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Old 04-21-2009, 03:27 PM   #14
bob n pam
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You're in our thoughts and prayers.

Pam
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Old 04-22-2009, 01:57 AM   #15
WorkerB
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Kathi,
Thank you for the update. We will continue to pray for you both.
John & Roxanne
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Old 04-22-2009, 02:50 AM   #16
Just148
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Our prayers are with you,
Wendell & Margaret
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Old 04-22-2009, 08:14 PM   #17
Sinterior
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Kathi, we are new to MOC but do understand what you are facing. Our best hopes for the best outcome for both you and Paul.
Peter and Terry (Teresa)
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Old 04-23-2009, 01:42 PM   #18
jrgwdenner
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Kathy, thanks for updating all of us on Paul's. You're looking to the right source for your strength. He will not fail you. May you feel the Lord's strength as you travel down this difficult road.
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Old 04-24-2009, 09:58 AM   #19
Bill-N-Donna
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Kathi, thanks for the up-date! From reading the forum there has been a lot of prayers that has gone up for him. Prayer can make a difference, hang in there!
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Old 04-26-2009, 09:18 AM   #20
sreigle
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Paul is one lucky guy to have a wife so dedicated to making him as comfortable as possible and so understanding to deal with the difficulties. We will continue keeping you both in our prayers.
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