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10-24-2009, 02:11 AM
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#1
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Montana Master
Join Date: Dec 2004
Location: Silver Springs
Posts: 2,873
M.O.C. #2716
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Daniel, Judy and Glenn Denner's Grandson
Many of you know Judy and Glenn and how they are wanna-be MOC'ers but were forced to buy a motorhome when they recieved full custody of their Grandson Daniel. Daniel is in a wheel chair and grew too big for Glenn and Judy to carry him up the stairs to the bathroom in the Montana.. The story is long but here it is for those that would like to read it. As quoted by Judy...
"Daniel's surgery
We have an appointment with the neurosurgeon at Children's Hospital, Birmingham, Alabama, on October 6th to learn the details of Daniel's surgery and meet the surgeon. We already know that Daniel will undergo a two step process involving two surgeries. On October 23, 2009, they will place a grid inside his skull on his brain which is attached to many electrodes. The readings collected from the grid during the week will reflect what areas are triggering his seizures. There are three areas that they're looking at, the frontal area, temporal area, and occipital area. Daniel's medicines will be stopped right before we go into the hospital so that he will have seizures during that first week in the hospital. This is so unpleasant and emotional to watch as some of the seizures are grand mals, which he doesn't usually have when he's on his anti-seizure medicines. But it gives the doctors the information that they need, along with the MRI and previous information that they have gathered. As unpleasant as it is for us to watch, Daniel is very unaware of the seizures which makes it more tolerable for us. The seizure activity really helps to pinpoint the trigger areas which are the areas that they will remove. The doctors are very hopeful that Daniel will have no noticeable deficits from the surgery because the areas that trigger his seizures are probably not functioning well already as a result of his birth injury. Children are very resilient and overcome deficits most of the time if they do occur. Actually, decreasing or stopping seizures can improve a person's short term memory and IQ.
The most reassuring thing about this entire process is the attitude of the staff at Children's. It is so frightening to us, Daniel's family, but so "routine" to the people whose mission in life is to help these children who suffer from seizures. Not all children can be helped through this surgery. If the seizures come from all over the brain, there is no specific area that can be removed. So it is a blessing that Daniel is a candidate for this procedure. He wants the surgery. Last week he told us, "I think I've had my share of seizures." His ultimate goal is to get his driver's license so anything to stop the seizures is okay with him. Such a brave guy!
The grid will be placed on Friday, October 23, 2009, and be in place for a week. The following Friday, Daniel will have a second surgery to have the affected cells removed. Four days later, he will go home if all goes well. He was excited to find out that he would be out of school for approximately one month until we assured him that he would have to make up his work!
We know that the Great Physician has his hand on this precious young man and cherish the prayers and well wishes of our family and friends. It may be interesting to know that this surgery has been done since the 1930s. So it sounds like they've had plenty of time to practice and hone their skills. "
Well the first surgery has been completed and Daniel has come thru with flying colors.. He now has about 120 electroids in his head.. I'm sure he will get a kick out of it when he see's the pictures of himself all wrapped up in a white turbin with little wires sticking out.. Maybe he can be an alien from outer space for halloween?
Prayers have helped them all so far and we ask that they continue as the second part of this procedure is carried out.. The MOC is such a supportive group and I know that Glenn, Judy and Daniel are very comforted knowing they have it.
Helen
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10-24-2009, 02:37 AM
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#2
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Montana Master
Join Date: May 2005
Location: Lake George
Posts: 1,078
M.O.C. #3847
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Happy to hear that Daniel's surgery went so well. We will pray for him and his grandparents as well.
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10-24-2009, 02:39 AM
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#3
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Montana Master
Join Date: Oct 2006
Location: _
Posts: 5,238
M.O.C. #6337
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Thanks Helen for the update. Daniel has been in our prayers since the Rally, and we continue praying for him. Glad to hear the first step went well!
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10-24-2009, 03:06 AM
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#4
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Montana Fan
Join Date: Nov 2004
Location: Raceland
Posts: 409
M.O.C. #2389
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Iris and i will be praying for Daniel and for yall also........
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10-24-2009, 03:43 AM
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#5
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Montana Master
Join Date: Jun 2004
Location: Benson
Posts: 3,121
M.O.C. #1658
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Glen & Judy,
We're glad to hear everything is going well. We'll be hoping and praying for Daniel
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10-24-2009, 05:08 AM
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#6
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Montana Master
Join Date: Sep 2003
Location: Forestville
Posts: 6,025
M.O.C. #496
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We are very happy to hear that Daniel's first surgery went well, we will be praying that all goes well with the second one and that he will be home soon.
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10-24-2009, 05:54 AM
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#7
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Montana Master
Join Date: Oct 2004
Location: Macomb Twp
Posts: 1,451
M.O.C. #2221
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Are prayers are continuing for Daniel and for the family.
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10-24-2009, 06:08 AM
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#8
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Montana Fan
Join Date: Jan 2008
Location: Windsor
Posts: 462
M.O.C. #8057
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We continue to keep Daniel and you all in our prayers!!!
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10-24-2009, 06:22 AM
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#9
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Montana Master
Join Date: Aug 2007
Location: Waterford
Posts: 3,693
M.O.C. #7500
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As parents of disabled child, we know first hand the difficulties Daniel and his grand parents face. God has blessed Daniel by giving him grand parents who care and look out for him. We will pray that God will reward them by helping them and Daniel through this period of his life. May God bless you all.
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10-24-2009, 06:27 AM
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#10
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Montana Master
Join Date: Jul 2007
Location: Dillon KOA
Posts: 1,291
M.O.C. #7445
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Kids and modern medicine are miracles! We are so happy to read about the success of your grandson's first surgery. You all are in our prayers for continued good fortune in your medical adventures.
Wayne & Carolyn
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10-24-2009, 08:59 AM
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#11
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Montana Master
Join Date: Apr 2009
Location: Murrieta
Posts: 5,816
M.O.C. #9257
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What an incredible story and process. It's amazing what is being done. Best of success for Daniel. We'll be keeping up the positive thoughts.
Take care everyone....
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10-24-2009, 11:28 AM
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#12
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Montana Master
Join Date: Aug 2008
Location: New Bern
Posts: 4,377
M.O.C. #8728
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One down and one to go. Our prayers are with him ans his family.
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10-24-2009, 03:28 PM
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#13
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Montana Master
Join Date: Jun 2007
Location: Eastern
Posts: 1,155
M.O.C. #7270
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Prayers from here also. It always seems hard when kids have problems but the master has a plan. We will pray that daniel gets better very soon.
bobby
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10-25-2009, 03:51 PM
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#14
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Montana Master
Join Date: Jun 2006
Location: Grand Blanc
Posts: 2,508
M.O.C. #5965
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Glen, Judy and Daniel are in our thoughts and prayers.
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10-26-2009, 11:11 AM
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#15
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Seasoned Camper
Join Date: Sep 2006
Location: Bridgewater
Posts: 59
M.O.C. #6290
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Our prayers are with you!
Our youngest son has a seizure condition and we can truely understand the pain that relatives feel when seeing a seizure.
We have various friends who have had similar proceedures and the results have been great. So we are optomistic and I hope the family has had the opportunity to talk to other families have benfited from the procedure.
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11-05-2009, 01:53 AM
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#16
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Montana Master
Join Date: Jan 2005
Location:
Posts: 2,232
M.O.C. #2975
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Prayers for Daniel, Judy and Glen. You all are in our thoughts.
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11-06-2009, 07:00 AM
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#17
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Montana Master
Join Date: Dec 2004
Location: Omaha
Posts: 2,077
M.O.C. #2780
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Our Prayers also go out to you. Praying that Daniels seizures can be controlled. Keep us posted
__________________
Paul and Jan Kelpe
2014 Big Sky 3150RL
2015 GMC Denali, Duramax/Allison
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11-07-2009, 12:48 AM
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#18
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Montana Master
Join Date: Dec 2004
Location: Silver Springs
Posts: 2,873
M.O.C. #2716
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Daniel has come through his second surgery with flying colors and is now back home with Glen and Judy recuperating.. We are still waiting on the outcome of the seizures. Hopefully they will have stopped completely. There was no further damage done to the brain during his six hour operation.. Thank you Lord.. We are still saying special prayers for the end results/
Helen
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11-07-2009, 03:18 AM
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#19
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Montana Master
Join Date: May 2007
Location: Weeki Wachee
Posts: 814
M.O.C. #7219
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Daniel, Glen and Judy all have our prayers and best wishes. A truly wonderful family!!! To know Daniel is to lose you heart to him, he's an inspiration to us.
Hugh and Pat
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11-14-2009, 05:26 PM
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#20
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Montana Master
Join Date: Feb 2004
Location: Wetumpka
Posts: 4,936
M.O.C. #1105
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Hi, Everybody. Thanks for your prayers and concerns. Daniel is doing well, and, best of all.....NO SEIZURES! We are so thankful. Daniel has been back to school for two half days. His biggest battle now is the extreme fatigue that he feels. He fell asleep in class on the second day and they had to take him out of the room because he was snoring!! Once we conquer this fatigue, he'll be happy.
Daniel has a big incision because he had two parts of his brain removed. The incision is itching now and basically making him miserable with the itchiness.. This too will pass. Did I say NO SEIZURES!!! About 85% of the people who have this surgery, called a lobectomy, are helped by the surgery. Daniel certainly seems to be one of that percentage.
We thank you so much for your prayers and your concern.
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